February 28 is International Rare Diseases day.Some of you may remember
the story of Meghan Ortega I posted a few months ago. Well, recently she
and her Mum, Lori Ortega ( blog - Beating Cowden's) hosted a hugely successful fundraiser to raise money
for a couple of organisations in the states who support rare diseases
like Cowdens syndrome. At that fundraiser Meghan showed the following
video she created. I hope you get some understanding about Cowden's
syndrome, the syndrome I have, from this precious, intelligent, young woman and her
experiences.
http://videos.videopress.com/IDX0X…//rdd-video-2015_fmt1.ogv
Till next time...xxx
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