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Monday, 4 April 2016

WE STRUGGLE BUT WE DON'T QUIT - GUEST POST 2

The response from the first post in the series " We struggle but we don't quit" has been absolutely overwhelming. Today I am pleased to introduce you to someone I call my little "Cow sister". Her name is Georgia.
The Adelaide girls - Hope, Tanya, Georgia, Roxanne and a West Australian imposter - me


I first met Roxanne (Georgia's mum) in an online support group for people with Cowden's syndrome. Over the years we have become good friends and have managed to meet up a few times. Roxanne has been a great support over the years and her personal strength is amazing. Her daughter is no different! As they say, the apple does not fall far from the tree.

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My name is Georgia, I am 14 and live in Adelaide, South Australia, Australia, the Southern Hemisphere, the world, the solar system, the Universe. And somewhere in this large space are people like me who are living with Cowden’s Syndrome. Less than 1% of people in South Australia have Cowden’s. I know 3 of them and 1 is my dad. I won’t explain much about Cowden’s because Suzannah is one of my ‘Cow sisters’ and she has told you lots over the years. But basically I am a 14-year-old teenager who has had 12 surgeries to remove tumours from all different parts of my body.
Not many people know that I have Cowden’s, they all just think “This is Georgia and Georgia has surgeries.” Which I’m fine with. The only people I have ever told are my two best friends whom I have known for years. They are very supportive and I am so grateful to have them by my side.
Everyone asks how I cope with Cowden’s, because I am always smiling and happy no matter what happens. The honest truth is I just look on the bright side, even if sometimes it’s so hard to find if there is one. For example in November last year I had a tumour removed from my foot which took 5 months to heal and an extra surgery to fix something that went wrong during the surgery. Yes, it still hurts every now and then but it is not as bad as the tumour pain was. This didn’t slow me down and I performed in my theatre production with a hole in the bottom of my foot.
I also live every day in the moment and I try not to worry about things ahead. I find if I worry about something like ‘what’s the doctor going to say.’ I will get very down and sad which I prefer not to be



Even though I have a rare disease I have done some amazing things in my life. I am a Girl Guide and I am working towards my Queens Guide badge (a high achievement in guiding). I am an s4s representative (Students for Students). I am also a netball coach and I play netball. I have played softball and I am a photographer. I have raised money for Jeans for Genes and I have travelled to many places in Australia with my Guide Unit and met amazing people. I have learnt a lot about leadership.


I have met many amazing people who deal with Cowden’s. When I was born the doctors told my parents that I would never walk or talk, but my mum and dad never gave up on me (it helps that my mum is a nurse). And  look at me now.
I am resilient.
GEORGIA
I am living with Cowden’s.

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There is so much to be learnt from Georgia's attitude! So glad I have my little Cow sister in my life to teach me.

Till next time...xxx
ST

14 comments:

  1. Wow you cow sister is amazing Suzi, so much go in her. Nice to see you can meet in person which makes bonds stronger.

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    1. Yes I've been lucky to visit SA a couple of times so it's been great Jen.

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  2. What an amazing girl! Georgia your attitude is awesome, you could teach a lot of people a thing or two and I hope my children have your mindset when they are your age :) Thanks for bringing positivity to my day!

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    1. I hope she is reading all these lovely comments xx

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  3. This is really beautiful, Michelle. Georgia is an inspiration. She has such a positive and surrendering attitude. Not surrendering as in defeatist, but surrendering to what cannot be controlled and focusing on what she can. Thank you for sharing Georgia's story with #UpsyDaisyLinkup!

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    1. Michelle and Georgia are both inspirational and positive. Thanks for reading xx

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  4. Wow she is amazing! Georgia is a good sister to have :) Before your posts and blog I never knew about Cowden's. So thank you for sharing this part of your life with us in such a positive way.

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  5. Georgia has such a great attitude! It must be very hard dealing with this disease. Thank you for sharing.#ALittleBitofEverything Crossingnewbridges.blogspot.com

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    1. It's very hard but spreading awareness and understanding helps. Thanks for reading x

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  6. Wow! Thanks for letting us meet her. Isn't the Internet great, where even with the rarest problem you have a way of reaching out and meeting others in your same situation to help you feel less alone? I love her attitude and especially the cookie meme.
    #happynowlinkup

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  7. What a talented girl and what an amazing personality she has, truly inspirational Thanks you fr sharing with us #Fridayreflections

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  8. What a great story. An inspirational girl.

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