Ready for surgery AGAIN |
Recently as I watched four doctors looking at an ultrasound picture of her thyroid with mouths hanging open in amazement, I realised this part of the story we would share. Like my thyroid, hers was huge and so full of nodules it looked like a visitor from an alien country had taken up residence in her neck. This was a goitre - a bloody big one - and as the surgeon said the need to remove it was a " no brainer". Ie it was coming out.
As Ashton has recently finished her university degree she is currently applying for jobs. The hospital could not guarantee a date as technically speaking there did not appear to be a need to rush. This was my first worry. I didn't want her to get a job and immediately have to take time off for surgery when her date arrived. After sharing a hotel room with her, I spoke to my husband as I had further worries. She appeared to be struggling to breathe properly. We decided to use the surgeon privately ( think $$$) to speed things up and within two weeks we had a surgery date.
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The risk of thyroid cancer in men and women with CS is estimated to be 35%. Thyroid cancer in CS is most commonly the follicular type but may also be the papillary type.
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Yes, we agree doctor. It's a " no brainer".
Back from theatre and sound asleep |
2 DAYS LATER: She is still in hospital because thyroid hormones and calcium levels are yet to stabilise. I remember this stage well. You get pins and needles in your fingers and toes and it is so uncomfortable. So she is on serious calcium therapy until the doctor is happy that she is safe. Apart from the levels, the doctor told us that a normal thyroid weighs about 10g. Ashton's thyroid he guesses was about 80g - EIGHT TIMES ITS NORMAL SIZE. AND, it had wound around her esophagus. No wonder she was struggling to breathe.
DAY 2 - doing well |
This is the human face of Cowden's syndrome.
We await pathology results.
Till next time ...xxx
Suzi -thanks for sharing yours and Ashton's story. I had never heard of CS before I started reading your blog. Praying for Ashton and wishing you all the best. Thanks for sharing with #overthemoon.
ReplyDeleteCathy you're a champ. When people say that to me i think " mission achieved".
DeleteWhat a sweet darling Ashton looks, I am so sorry for all that she (and you) go through time after time. I pray that there are better days ahead, and a great job for Ashton too.
ReplyDeleteKathleen
Bloggers Pit Stop
You are so sweet to say and wish that for us. Thanks for reading.
DeleteYou gals continue to inspire us. So glad we have each other. So sorry we share this mess. Praying for some peace!
ReplyDeleteYou gals continue to inspire us. So glad we have each other. So sorry we share this mess. Praying for some peace!
ReplyDeleteAnd it never ends does it!
Deleteyou are in my prayers, you are both amazing xx #mg
ReplyDeleteEveryone with CS is amazing. Trying to do my bit to raise awareness xxx
DeleteEveryone with CS is amazing. Trying to do my bit to raise awareness xxx
DeleteWishing your daughter well. Thanks for sharing the information and being so open and honest. xx
ReplyDeleteYou're both an inspiration.
ReplyDelete