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Sunday, 30 August 2015

CUT ME UP

Increasingly in the last few years, more and more of my procedures have been done under local anaesthetic. It makes for a simpler day. You go into hospital fifteen minutes before your scheduled time. You are admitted in record time and sometimes ( like last week) you don't even have to wear a theatre gown. After the procedure, you get a nice coffee and biscuit and you get to drive yourself home. Simple? Sometimes.

On the agenda for this day was removal of a suspected lipoma ( fat tumour) in my right wrist and removal of a hard " something" on my scalp. I wanted them taken out quickly because I had an ear infection, was already feeling rotten and wanted to be back in my bed ASAP. Ear infections frequently torment me. The day before I had woken to throbbing ears, inflamed red knuckles and a red rash on my neck. A pharmacist later confirmed an allergy to the antibiotics being used to treat my ears. Not wanting to put myself through the rigmarole of an appointment with another GP, I thought I would suffer in silence for the next four days, till I could see my own GP.

So there I sat miserable as sin waiting to be called into theatre. 

" The nurses and I have decided that frequent fliers ( ie you) need to bring us cake from now on" said my plastic surgeon as I entered theatre. 
"Not a problem" I said. "one dozen Westcoast Eagles cupcakes coming up". 
He laughed because I know he is an avid fan of an opposing team.




"What's growing on my head?" I asked.
" With you, who knows?", he replied.

And so it began with the local anaesthetic in my wrist which hurt a bit and the local anaesthetic in my scalp which hurt a lot. Maybe it hurt more because my ears were already in pain. Who knows? I held back the tears and grit my teeth, but man it hurt. What finished me off was the sound of the scissors cutting through my scalp. I lay there thoroughly miserable and fully aware that my doctor was currently cutting out a bit of my scalp and sewing it up. I felt no pain but I could hear everything and it wasn't fun.

"Next time I'll have a general thanks", I said. 
No reply.

The rest of the day I felt like I had been run over by a truck. I was dizzy ( probably from my ears) and in pain on my head. The wrist was fine. 

A couple of days later my husband and I returned to Geraldton. Head and wrist pain were all gone but what was with the dizzies coming and going? I could hardly stand without losing my balance and if I was standing and feeling fine, in a split second this could change. My husband found this out the hard way when we stopped for food and drink and he had to catch me before I toppled over at the counter. This had to be more than just ears.

My GP changed my antibiotics and sent me off to have a multitude of blood tests and an ultrasound on my adrenal gland area. The guy doing my ultrasound said that adrenals are rarely seen in adults. I'm not sure what I was supposed to say to that. I am in the hands of my doctor. " If she wants an ultrasound of my adrenals he can bloody well find them", I thought.

Pathology tests are in - lipoma in wrist and cyst on scalp.

Blood tests are in - all good except calcium very low. That can make you dizzy if it's low. BINGO.

Ultrasound results not in - sonographer last seen hunting for adrenal glands.
                       
Fun and games

Till next time...xxx






  


Tuesday, 25 August 2015

JOIN HANDS TO BEAT CANCER

Daffodil Day


This post is in memory of a 29 year old Cowden's syndrome man who passed away this week. RIP Michael Young. Your resilience and strength and your cheeky sense of humour will not be forgotten.

Daffodil Day

 

Friday 28th August 2015

Show you care about beating cancer this Daffodil Day 

(http://www.cancer.org.au/get-involved/events/daffodil-day/)
Every day in Australia, around 350 people are told they have a life-threatening cancer. The survival rate for many common cancers has increased by 30% in the last two decades, but we still have a long way to go.
Cancer Council - DaffodilYou can show you care about beating cancer this Daffodil Day by:

Your support will help Cancer Council continue to fund research into the prevention, detection and treatment of cancer and its information and support services.
Get involved and show you care about beating cancer this Daffodil Day.
 ------------------------------------------------------------------------------------------------------------------
 
 A diagnosis of cancer is not always a life sentence, but it does have long lasting repercussions and whether you choose to admit it or not, it changes you. It changes the way you look at life and it makes you question whether things you once felt were so essential really are.

Most importantly it makes you want to have a better quality of life without sweating the small stuff and without toxic people draining your every moment.As the picture says, it pushes you to live.

Daffodil day is all about raising money to support people at various stages of their treatment. When I was going through my treatment I was able to receive some financial help and to use the help line in the middle of the night. This is often a difficult time for cancer patients and their thoughts.

This Friday, if you are in Australia, support Daffodil Day. Buy some flowers, a pin, a soft toy and be assured that the money is very well spent and much needed.

DID YOU KNOW?
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ALSO THIS FRIDAY: I HAVE DECIDED TO RELEASE MY BOOK ONE LUMP OR TWO?, THREE DAYS EARLY TO COINCIDE WITH DAFFODIL DAY. THANK YOU TO THOSE PEOPLE WHO HAVE SUPPORTED ME BY PRE-ORDERING THE BOOK. THE LINK IS JUST BELOW IF YOU WISH TO STILL ORDER.

YOU DO NOT REQUIRE A KINDLE BUT IF YOU DON'T HAVE ONE YOU WILL NEED A KINDLE READER DOWNLOADED TO YOUR DEVICE.


 ONE LUMP OR TWO?




Have a good week
Till next time...xxx







Thursday, 20 August 2015

FINALLY SOME DIGNITY

This week was doctors week. As I live four and a half hours away I try to make appointments close together to make my life a bit easier. This week in three days I had four appointments scheduled for either myself or my children. Yes, you read correctly. I said four. This week was expenditure "plus" week, not just of money but also of my inner strength and perseverance. You see doctors week stresses me at the best of times. But I was expecting the worst this week because three out of four appointments required me to advocate for my condition, and one of those three had already insinuated that if she didn't know about it, it must not exist.

Advocating for Cowdens syndrome is physically and mentally exhausting. It is hard work. Why it needs to be, I have no idea. I don't expect every doctor to know about every single condition, but some doctors appear to take offence that you know something they don't. I belong to four online Cowdens syndrome groups so I am exposed to many different people with the syndrome. We're talking well over one hundred, not bad for a condition affecting 1 in 200 000. So it stands to reason that I may know a lot more about how this rare condition can manifest itself. I need to share to feel that I am receiving the right treatment. I need to be able to give some insight on what it's like to have this condition. It's not being a show off. It just is what it is - having the contacts.

My first appointment was with a new doctor. She also had a medical student sitting in with her. Alarm bells! Doctors with medical students don't like showing students what they don't know. But I couldn't be more wrong this time. She was pleasant and welcoming. She was delighted I had brought copies of recent blood tests and asked interested appropriate questions about Cowdens. She told her medical student that she loves learning from her patients and to embrace their knowledge. I just about fainted from the shock. Finally some dignity. She finished me off by saying that she can't begin to understand how hard it must be to continually have to advocate for myself. I was speechless.

Doctor number 2 was later that day. In all my career as a professional patient I have never come across a doctor like this one. Not only did he have star quality ( once a doctor to Nelson Mandela) but he was warm, funny and extremely knowledgeable. My younger daughter warmed to him immediately and I silently thanked God, because she doesn't do well at all with medical stuff. When the inevitable Cowdens medical history  arose he asked question after question. At one stage obviously impressed by my answers he asked me if I was a doctor. There was a moment of panic in my brain, followed by the feeling he could be thinking I was a smart arse. Again I was wrong. He complimented me on my knowledge and told me to never, ever stop learning and advocating for the condition. For the first time in a long time I was overwhelmed for all the right reasons. For the first time in ages I felt that there was hope. Later on Ciara told her sister that her doctor was impressed with Mum, because she knew lots of big words. If only she knows how those big words sometimes keep me awake at night.

Doctor number 3 was the big test. She was the one who gave us short shrift last time. She was the one that shut me down on everything I tried to say. She was the one who made me feel if she didn't know about it, it must not exist. In a welcome and surprise about face, she presented us with all the facts I had tried to share with her last time. I sat quietly but felt smug. I didn't even blink an eyelid when she presented Ashton with an article on Cowdens testing protocols. I actually felt like punching her but just felt relieved that my daughter would be getting what I know she needs. And it was ALL THE DOCTOR'S IDEA OF COURSE!!

So, there is hope and this week there has been dignity. Maybe one day a patient with Cowdens syndrome will walk into a GP and be told by them what needs to be done, not the opposite. When medical students thank you for educating them, yes there is hope for the future.

Till next time...xxx









Friday, 14 August 2015

AN ORANGE ADDICTION

" Orange is the New Black" seems to be everyone's favourite addictive piece of TV. As per usual, I am at least 100 light years behind everyone and have only just started it. Don't get me wrong, I knew it was there, because any time I tried speaking to my daughters, their eyes remained glued to the
screen and I  got a token nod and the standard " yes Mum" to any question or statement I asked.

How are you? Yes, Mum.
Shall we go grab a coffee and you pay? Yes, Mum. ( definitely something wrong!)
The sun is black today. Yes, Mum.
Would you like me to rip of all my clothes and run down the street? Yes, Mum.

OK. Last one was a trifle exaggerated but whatever it was had them and everyone around me hooked. So, finally curiosity killed this cat and I signed up for Netflix and OITNB. This was a BIG MISTAKE cos now I am totally and utterly addicted myself. My eldest daughter ( bless her heart) tried to protect me by warning me about the sexual elements of the programme. Why do young people always believe they invented sex? Unfortunately after an eternity teaching teenagers, very little scandalises me any more, this series included. But fascinated I definitely am.

What is it about other people's lives that make them so intriguing and why can I get very little done until I have seen every single episode of all three seasons of this series?  I cook with the iPad on. I wake up early and watch it in bed. I rip through my chores to watch another episode. I go to bed early so I can cuddle up to my iPad and see what happens next. Addiction is a problem and I freely admit it, I am addicted to this series, so much so that I dread what will happen to my morale when I finish season 3  and there is nothing left to watch.

The last time this happened was after my breast cancer surgery when my neighbour Ally walked in
with every episode of "Sex in the City" and told me it was scientifically proven therapy. She was so right that I never moved for a month. How had I never watched this on TV? I told you. I am always light years behind. I didn't even know what a Jimmy Choo or a Christian Louboutin  shoe was till then. I was a disgrace to the female race till that series.

Other people's lives often appear to be so much more interesting than your own.Its easy to get caught up in the escapism that life in a prison or a serious shoe fetish provides, because its so far from your reality that it provides a temporary break. Its good to escape. Its healthy. But after a while engaging back with the real world is necessary or it becomes a totally different issue. It becomes avoidance.

I meet a lot of bloggers online and sometimes they let you into a snippet of their lives. Everyone appears to be addicted to something - food, weird diets, religion, certain life styles. And yes some of them are interesting and some well are just not for me. I'll tell you one that is not for me -kale. My husband recently planted a lot of kale because everyone has been claiming how addicted to the health benefits of kale they are. I'm calling bullshit on that one right now. My body does not like kale. I do not like kale and I could easily provide wind energy to a small country if forced to eat it again. But some people are addicted to the stuff and good luck to them. I'll stick to a prison series. It doesn't effect my digestive system.

A lot of people used to tell me I was addicted to coke zero. Again, sorry to my mother and brother who think I consume 3 cans a day, but I actually consumed 1 can a day. The very nature of the word addiction implies a pleasurable act which becomes compulsive and interferes with ordinary life responsibilities, such as work. Drinking coke zero was pleasurable and compulsive but did not interfere with anything, or so I thought. I  stopped  months ago, of my own accord when I learned about the dangers of aspartame. Scientifically proven or not, anything you consume regularly that effects your body is an addiction and I don't need to risk anything stuffing up my body further. Its already a mess without aspartame in it. So, I ditched the chemical pleasure zone.

I'm sure some people will think there are good addictions. I'm not sure about whether such a thing exists but happy for you all to enlighten me. Tell me what you are addicted to and whether a good addiction is possible or whether it is an avoidance tactic for something deeper. 

I will leave you with that deep thought. 7 episodes to go.

Till next time...xxx

Wednesday, 5 August 2015

DIARY OF AN INSOMNIAC

SLEEP and I have a bad relationship, so much so that I am known to sometimes seek out pharmaceutical help, to stop insanity from lack of sleep, developing too early. With the life I lead , insanity IS going to develop, but I would like to prolong the inevitable for as long as I can.

For your enjoyment and understanding let me take you into a typical night in my life. This is last night,  a night with no pharmaceutical help. Read it and weep for me folks.

6pm - cooking dinner. Overwhelmed by wave of tiredness. Feeling quite light headed so dish out dinner and lie on couch to watch Home and Away on TV.

7.30pm - decide to head to bed as can hardly keep eyes open.

8pm - tucked into bed conversing with the world via iPad. Electric blanket is on and slowly drifting to sleep.

10 pm - husband comes to bed. Cuddled up to warm husband in warm bed and very sleepy.

10.05pm - phone text beeps x2. Ring tone belongs to daughter number 2. Instant panic that something is wrong. Text reads - " Mum, are you asleep?" I reply - " Who died? What did you kill? How much is it going to cost me? " As an afterthought I add " are you OK?". She replies " Very funny. It's OK. It can wait till morning." It obviously can't.

11pm - complete marathon texting session about study opportunities available for next year. Husband snoring. Last text is audio of Dad snoring for her enjoyment.

11.05pm - WHAT IS SHE GOING TO DO NEXT YEAR? Replay discussion in head and weigh up pros and cons as now wide awake. Elbow husband to stop snoring. Try to sleep but impossible with that racket.

12pm -  I do not need to pee. I do NOT need to pee.

12.10am - I need to pee.

12.15am - phone flashing on silent. Avoiding full glass of water, grab phone and glasses and dive under doona cover to read messages. Then check Facebook, Twitter, Google plus, emails and Instagram. May as well cos am wide awake!

2am - grab pillow and move to couch in lounge room. Get cosy as its freezing after the electric blanket.

2.05am - get up because light turns on outside. Instant fear of intruder. Rotating Hills Hoist ( washing line for all non Aussies) has triggered husband's new sensor light toy.

2.10am - start to replay every intruder story heard lately. Analyse every sound outside. Finally I  sleep.

3 am- I need to pee. Traipse back to bedroom narrowly missing vacuum cleaner I should have put away hours ago.

3.05am - wide awake. Body overcome by wind pains. Ouch, ouch and ouch. It seems my body doesn't like my home made quiche.

4am - still wide awake. Husband stirs and asks me how I slept. Resist crazy woman urge to strangle him.

4.30 am - husband gets up and heads to work for super early shift. I have the whole bed to myself and I still can't sleep.

5 am - get up to make warm drink. Come back to bed and knock over glass of water. Swear loudly.

5.30am - foul mood so start writing blog post. Neighbours go to work. Random thought - have  no idea what neighbour looks like. Should say hello in case of possible intruder.

6am - turn light off and finally go to sleep. Thank God I don't have a job to go to.

8am - WIDE AWAKE so get up and have breakfast. Totally and utterly wrecked.

8.30am - Back to bed.

12.00pm - GOOD MORNING! ....GOOD AFTERNOON?

My life is such fun.

Till next time...xxx

ST

Friday, 31 July 2015

THINGS I WAS NEVER TOLD ABOUT MEN

I was just watching TV and the Morning Show hosts were discussing a celebrity couple who have been married for 24 years. They said that was a "pretty solid" relationship and I agree. The husband and I are at 24 years and I'd like to think we too are solid. Sometimes I joke it's two and a half life sentences and counting ...but only sometimes I promise.

Marriage is hard work and yes that's on both sides dear. But as I can't give you a male perspective, I thought I'd share with you some things I have discovered during marriage. Maybe we could say they are some things no woman ever told ME about MY husband to avoid being accused about generalising.

1. Say you have two bathrooms and say one is blue and one is cream. And let's pretend that you have spent time coordinating accessories to make these bathrooms beautiful. Men don't get that the blue towels are for bathroom A and cream towels are for bathroom B. They will stand proudly because they've put the two towels out ( one of each colour) and not ever consider it a problem that they've just wiped their greasy hands on the towels you have saved for guests. They just don't get it!

2. And say you've spent a fortune on Tupperware and your pantry is beautiful. Every section looks like it came out of the Tupperware catalogue, and you glow with pride when your female friends come round, because you want to create the illusion that you are as organised as your pantry. And say you go away and on your return you just have to stand in shock, because an earthquake has obviously taken place in your absence. Everything is now out of order and all over the place, and is the visual version of a headache. And nestled amongst the sugar which is now in the rice container and rice which is now in the flour container, lie torches, batteries and enough wire to construct a small machine. But that's OK apparently because the shopping has been done and put away. They just don't get it!

3. And let's talk about clothes. Do all men undress all over the house or is it just mine? In the morning there is a trail where he has been. Tracksuit pants are in one room. Top is in another. The following morning the same picture with new items, because he has forgotten where he left yesterday's lot. Is it so hard to undress in the bedroom and leave your clothes there? They just don't get it!

4.  Hubby recently bought me a box of Lindt chocolates for our wedding anniversary. I thought this was so sweet, but as I try to watch my weight, I put them at the top of the pantry where I could grab one occasionally. Bad move. I NEVER saw those chocolates again. I also never saw the cooking chocolate or the emergency pack of biscuits I keep hidden should visitors drop in. Marriage ownership laws are as follows from a male perspective. What's mine is mine and I will hide in my shed while I devour it, in the hope you don't blast me or catch me out. What's yours is ours, if its something I like. And as I pretty much like everything you try to hide, forget it. I will continue to buy you gifts of this nature because I'm a great husband and I like buying my wife chocolates. I will occasionally leave you one white Lindt ball because I am such a good bloke. I don't like white chocolate. It is not flaming chocolate. If it was it would be BROWN!!! They just don't get it!

5. And while we are on the subject of food, I hate to tell you this but men don't care about food as long as they get to eat the bloody stuff. Many times I have plated up something special and waited for a compliment. And waited...and waited to no avail. But try serving up quinoa and you will never hear the end of it. Try also making him muesli bars to minimise the processed junk he eats and he will tell
you how yummy they are, and eat them all plus the commercial muesli bars. Try accidentally on purpose not buying the muesli bars and he will make a special trip to Woolworths to buy some. Try getting him to go to Woolworths with you on any other day and you would have more luck watching grass grow. They just don't get it!

6. Which brings me to something else which grows - hair. Why is it that they can not see that your hair has changed colour since the morning? Why is it they can't see that your head is perfectly groomed? And if you bring up the topic they try to suck up to you saying "you always look nice. Why would I notice?" Yet they'll always find the cost on the credit card bill and tell you how it cost $20 to cut his hair so why is mine so much? They just don't get it do they?

Yes, folks marriage is not for the faint hearted. It requires patience, patience and more patience. And the occasional bit of "head banging" on the walls - preferably his head not yours!

Love you hubby

Till next time...xxx




Tuesday, 28 July 2015

GUEST POST - WELCOME JEN FROM NANNA'S WISDOM



My family has a real problem with food allergies. Most of us are lactose intolerant and allergic to sulphur. My sister is allergic to red meat (!) and is also a coeliac. That's a hard life to maintain. Last night I tried to have a glass of red wine with my dinner. Usually I have an anti sulphur spray but I had run out. I stupidly thought I could risk it and ended up with red, swollen hands. Damn that sulphur.
 I had the great honour last week of being guest blogger on the blog Nanna's Wisdom. (http://lumpyone.blogspot.com.au/2015/07/yes-ive-got-news.html)This week its Jen's turn to be my guest blogger and when out of frustration with my allergies, I suggested this topic, she took up the challenge.She makes some really interesting points.


 Allergies - We Do Not Want Them

Have you noticed how many people have allergies these days? I know for sure it is not because we are getting weaker as humans but rather us humans are changing the way things are or should be.
Many people think that we are living longer these days but I hate to be the bearer of bad news, it is actually a fallacy, a myth put out there by pharmaceutical companies . We like to think that with modern research and advancement with medicines that we are curing diseases, and do not get me wrong we are doing some brilliant work.

You need to look back 120 years and you may understand my statement , and by way of figures we certainly are living longer now, but take a closer look. We have had 4 wars in that time in which there were hundreds of thousands killed, including woman and children. This makes the average age very low compared to modern times. So can we really say we are living longer, I will leave that one up to you.

We in today's society are seeing more food allergies , so why have they suddenly appeared? We did not hear of nut allergies or gluten intolerance or dairy allergies when I was growing up. Were they around and I was just not aware of them?

Our food is not like it was 50 years ago, it is grown with chemicals , pesticides, herbicides on our fruit and veg ,medicated foods in our meat. The nutrient values are changing at an alarming rate.
Just take a look at this study on fresh fruit and veg done in Japan.

Processed food

Not only is our food changing in the way it is grown, but also the way it is processed for us. Take our humble milk that we have had all our life. When I was growing up milk was delivered to the door in glass bottles with a thick layer of cream. Today's milk is far from this natural creamy product.
I was in the supermarket the other day and had my attention made to a big stack of can soup, advertised as " healthy & hearty winter warmers". Okay they may warm the belly on a cold winters day , but honestly " healthy & hearty" they were not. These cans were so high in sodium, saturated fats and of course those nasty things like flavour enhancers, stabilizers, artificial colouring. Prepackaged instant just heat and serve meals are great for the non cook or just in a hurry meal but ...... fresh is best.

All these things that are added to our food is not natural for our bodies. We were never meant to be consuming additives like MSG, enhancers or stabilisers. Our poor bodies have no other option but to react in the way of allergies. Okay some people are lucky; nothing ever affects them , but I know several people that suffer allergies, all coming from different walks of life and all having different health issues.

 I for one have an allergy to the sun, yes the sun. How you how ask? Well I will explain.
I have what is called Solar Urticaria , and only developed it in my early 40s, when I started having breakouts of  raised burning welts all over my skin that itched for a week after . I had no idea what it was. What I did know that it always happened outside and on my exposed skin. Eventually I was diagnosed .  This happened because of a reaction I had with some medication making me super sensitive to UV . The medication was made from artificial chemicals and full of things that give you side effects.

So What Can We Do?

We cannot change the way things are grown or made but we can change the way we personally eat and live.

Here are few things that can help you stay a bit healthier by staying away from the bad things .

  If you can buy organic , it may cost you a little more but I find it hard to put a price on my health. Local markets are good but make sure the produce are organically grown, if there is no sign stating organic then the chances are it has had contact with chemicals.
  Remember any  processed food ( including take away) are usually high in all the things you do not want to be consuming like fats, sugars, salt.
  Fruit , vegetables, grains and meat are mostly farmed on the larger scales so it is highly likely that the use of herbicides, pesticides , fertilisers and even antibiotics are used. So is this leaching into our foods? My opinion is yes.
  Cook from scratch. If you want soup , then make it at home. Soup is so easy to make and if you use fresh raw ingredients you cannot go wrong. Cooking from home with even the basic knowledge in the kitchen can produce some mighty fine food that is full of flavour and hopefully nutrients. Bake your biscuits and cakes.
  If you are lucky enough to own a Thermomix or similar then you can make so much , like all your own pastes for your curries and the likes. Fresh chutney, pickles, jams etc are all too easy in one of these wonderful machines.
  Try growing some veggies and herbs at home. Use natural sprays like garlic to keep the bugs away. You will find they taste so good compared to store bought.
  There are chemicals in our shampoos, hand & face creams, deodorants , sunscreens and our cleaning goods, ( just to name a few) but we do have a choice to change to chemical free. Even if it is only one thing at a time, it all helps.


 I think we all need to get back to the basics, what are your thoughts?

_________________________________________________________________________

Thank you Jen for your really interesting post. If you would like to follow Jen on any of her social media accounts , all the links are below for you to click away on!



JEN




Till next time...xxx
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